I used regular tylenol only immediately following surgery and upon returning home. Please help me understand! and his team (same group who did the right one). I'm normally an extremely social individual that loves living life to the fullest and experiencing the best that it has to offer. Don't get a ct scan ask for an ultrasound first. This option may be indicated if a thyroid nodule is small and localized to one side of the . It will go away. Post thyroidectomy neck pain after endoscopic thyroidectomy. And yes, after I got out of the hospital and all the heavy-duty painkillers wore off, I had terribly sharp, stabbing pain in my neck. I did not want to be anywhere around my kids or clients. The Annual International Thyroid Cancer Survivors' Conference and Regional Workshops, Front neck numbness post Total Thyroidectomy (TT). They required me to start out on a liquid diet, which I tore through like crazy (the cherry "ice" was really good). But, you could tell pre-op was used to people popping in for a brief stay and then being whisked off to surgery. So today I began seeing a new primary care doc (because of new insurance) and asked if she'd feel ok with managing my thyroid stuff, and she agreed to. In fact, at first, I couldn't see it because it was the same color as my skin. On the 16th of September I star my physical therapy, I have defiantly noticed that during and for the next few hours after physical therapy my knees hurt a lot more as expected for the next 4 or so days the pain is greatly reduced and I can walk better. Things seem better and worse at the same time. I'm dizzy like I'm drunk and nauseated. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. She says slowing down in terms of socialization and being tied to my desk more has caused me to have bad posture and allow the tension to really build in that area. April 2nd Madigan Surgery Stapendectomy was performed on my right ear. Epub 2021 Jun 1. Facial and Jaw pain. Endocrine Today | A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. You may need a thyroidectomy if you have thyroid cancer or a growth on your . 2 Sep end of my convalescence leave, and back to work. Trust me they are, but I worked it out. Some of it still doesn't make sense to me (in that the sequence of logic fails me), but then again I was on strong pain killers for part of the time and I didn't go to medical school. However, patients who undergo thyroid surgery often experience discomfort symptoms such as stretching, pressing, or choking feelings in the neck, headache, shoulder stiffness, and difficulty in moving the neck or shoulders. mcg of synthyroid. You should wait at least 6 months after surgery to see how much would neck skin retract. My Dr (Endo) said he did not want me in his office for another 7 days and the hospital nurse said that was crazy and she used a Geiger counter on me to see how "hot" I was. The mass was softball size and the cancerous tumor was 4.8 cm follicular cancer with hurthle cell varient, since August 2012 I have had a partial thyroidectomy, TT 2 weeks later, RAI 157 mc October 17th, modified neck dissection Nov. 27th and now it's the waiting from blood test to body scans and getting the meds adjusted just right, a lot of side effects with Levothyroxin. I contacted the surgeon-he blamed the post op Percocet. . Also on the 4th I have a physical therapy appointment with one of the technicians and he did another wonderfully painfully session but the next 2 days there was basically no knee pain. Below are general instructions for patients who have had thyroid or parathyroid surgery. An MRI of my neck (ordered by orthopedic due to neck pain) showed not only several herniated bulging discs- but a mass on my right thyroid gland. A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. We watched tv and I prepared to watch the Monday Night Football game (pretty much normal for me). No chemo or typical radiation but I had pretty major surgery, will need to take meds the rest of my life and LID and RAI was/is no picnic. To analyze the effect of neck stretching exercises, following a total thyroidectomy, on reducing neck pain and disability. 2nd of August was my last visit with Dr E., he thinks am in a stable mental state and we both agree that more appointments right now probably wouldnt help any. Pain medication doesn't agree with him. National Library of Medicine So hopefully this helps calm down some of you starting to go through this process because its not all bad experiences (and this is coming from someone who has had their cancer spread described as "Chernobyl-like"). 1) When can I start running and exercising? I also received some stitches on nerves inside. I really haven't had pain since mid-lsat week. Again, my surgeon only says it's normal with minimal to no explanation whatsoever. As his caregiver I am feeling so helpless. On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. 2) Did anyone else get post RAI Ultrasounds and show remnant tissue in thyroid bed? This is the post I put online two days after surgery https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/home-from-tt/ Some of it was while I was still sore and using pain meds. I got about half a sip down and the other half went all over my hospital gown. The surgical pathology reported a 5 cm papillary thyroid cancer in the left lobe of the thyroid with lymphovascular invasion, microscopic positive surgical margins, with five of 59 positive lymph nodes (two left level IIA nodes, one Delphian node and two level VI nodes). My salvitory glands swelled up a bit and were sore the first day, my sense of taste just minorly changed and was a little fatigued/headachy for a couple days. By Friday morning I got up at 7:15 a.m. and stood in line in 32 degree weather for some Goose Island Bourbon County, went to lunch and ate a cheeseburger. He has a burning sensation on his upper chest, shoulder,neck, behind his ear, with sharp pains. She was right, the yogurt was a snap to get down while the apple juice was really painful. I was told I would be having surgery in mid-October and it was not able to be scheduled until November 23. I do remember them asking me a few times if I was in pain and giving me more pain medication. I have felt 100% on my medicine (and I've been all over the TSH scale). I was in an intense state of fear at this point after calming down somewhat in the original hospital room. Korean Society of Laryngology, Phoniatrics and Logopedics Guideline Task Force; Ryu CH, Lee SJ, Cho JG, Choi IJ, Choi YS, Hong YT, Jung SY, Kim JW, Lee DY, Lee DK, Lee G, Lee SJ, Lee YC, Lee YS, Nam IC, Park KN, Park YM, Sung ES, Son HY, Seo IH, Lee BJ, Lim JY. After hours emergency: A/Professor Miller's mobile - emergency only please. I know its a bit silly but I am kind of nervous of attending the cancer survivor group. Know that this cancer is treatable and you will be ok but do not belittle your diagnosis - it sucks- don't neglect your fears they will eat you up. My dr was booked until late February and I was freaking out so I went to the ER. Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist. At home I had only pain pills (as needed) and Motrin (every eight hours) no more IV pain medication. The surgery went well and the next day I was released from the hospital to recover. I am usually not one to write on here because It is my husband who had thyroid cancer in 2013 & most recently a neck dissection on his right side they removed 31 lymph nodes & thankfully only 1 was cancer. The surgery before me was running late and the clock just kept getting later and later. Could be in the supermarket or at KFC, I have no idea. I really needed people telling me what was going on. They gave me two pain pills just as I was leaving the hospital and they took about 15 to 20 minutes to kick in. Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. I then asked if I could have something more substantial and the doctor came in and looked at my plate (which looked like an animal had been fed at the zoo) and said I could have whatever I wanted. They brought him back to see me in pre-op again. I was sent to the ICU (I knew I would be going there) because the surgeon wanted me to have better nurse ratios overnight. Today it seems very logical to have asked for something like that, but at the time I was just in the frame of mind to wait. Hi Sweetpea2936! This close anatomical relationship with the thyroid makes the sympathetic trunk and the middle cervical ganglion vulnerable during thyroidectomy, especially when performed with a central neck dissection for metastatic nodes. My partner was waiting in the lobby and then I was moved to my room just before 11pm. When I told my endo 3 weeks ago that I feel cruddy, I had a blood panel done and everything is in the normal range. I also covered the furniture with sheets and cleaned up with soap and water and a dry towel everyday. It's typically worse the day after surgery and quickly begins to get better. I've read some of the older posts concerning this issue but the posts are discontinued. I have been constantly monitoring my weight and diet, and have been able to keep it in check till now. Clin Exp Otorhinolaryngol. Takamura Y, Miyauchi A, Tomoda C, Uruno T, Ito Y, Miya A, Kobayashi K, Matsuzuka F, Amino N, Kuma K. World J Surg. On Feb 25th I had the first visit to mental health but do to the fact that my hearing was as bad as it was along with the recovering from surgery I was rescheduled for a later time. I am hoping against hope that I can build my endurance with regular exercise. They advised against it thinking that until TSH is low it increases likelyhood of cancer spread as it would increase my metabolism. I started exercising 6-8 weeks after the surgery and realised I feel breathless much easily and if I exert too much, there's a slight pain on the upper left side of my neck. 2007 Mar;39(2):126-32. doi: 10.2340/16501977-0015. That is where my memory starts to come back. The day of surgery I was scheduled for 2pm arrival and a 4pm surgery as an outpatient. 14 Months After Thyroidectomy. But the order of operations has gone like this and I wish I knew all this stuff before (FYI I am a 37yo American but in Manila Philippines so am very frustrated/worried about processes or lack there of): As an example, one surgeon said he wouldn't do the surgery without intraoperative nerve monitoring of the recurrent larynegal nerve and the other said he thinks it's a waste of time to use the nerve monitor. A full Thyroidectomy was done 6 days ago. Ask for the brand name thyroid drug. Now though my right knee has been making me limp a bit for the past few weeks will have a Dr Appointment while on convalescence leave. Get the latest news and education delivered to your inbox, Receive an email when new articles are posted on, Please provide your email address to receive an email when new articles are posted on. I was a bit hysterical as it common to do TTs on children as early as 1 year of age with MENS. undefined will no longer be visible to you including posts, replies, and photos. It is important for endocrinologists and thyroid surgeons to be aware of this uncommon complication to reduce the risk for this facial disfigurement during surgery. Mine is Synthroid and it really is noticeably better. I was told to get naked and to put on a gown called a bair paws gown. I am 27 years old and was diagnosed with papillary thyroid carcinoma in December last year. I had a Total Thyroidectomy around 9 weeks ago for FVPTC, then they ran me hypothyroid for 6 weeks and pushed TSH over 100, then did my RAI 3 weeks ago. 2022 Feb;15(1):24-48. doi: 10.21053/ceo.2021.00633. Jon. I really looked into doing the surgery using the daVinci robot with the incision in the arm pit not on the neck. Clipboard, Search History, and several other advanced features are temporarily unavailable. They just put me on a table and put a flat board 2" above my nose and it slowly moved down my body. DON'T get a tonsillectomy with your TT. The other doctor did about 45 thyroidectomies per year. That's a nice way of saying they put it in a neck wrinkle. Just seems like order of operations has been a complete mess. When, my partner got there, I asked him to get me a towel (it's amazing how much more I'll ask for through someone else rather than on my own I don't know if I'm the only one that way) and to wipe my back off. I got a copy of RAI film and right starburst is bigger than left . maybe this is why. But I was informed that they would be delay in visits while I was recovering from radiation treatment. Parathyroidectomy cures almost all cases of primary hyperparathyroidism and returns blood calcium levels to a healthy range. He also set me up with some Blood tests and put in the recommendation for a full Sleep Apnea study in Silverdale. Injury: Trauma and other injuries can damage muscles, ligaments, disks, vertebral joints and nerve roots in your spinal cord and lead to neck pain. But, I do with exacting detail remember my first sip of water. Bethesda, MD 20894, Web Policies I saw the bandage over the scar for the first time and was really surprised at how small it was. They gave me a pill and I drove to a cabin in the mts. #1. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. The effects of cervical kinesiotaping on neck pain, range of motion, and disability in patients following thyroidectomy: a randomized, double-blind, sham-controlled clinical trial. He switched my meds from levothyroxin to synthroid and I noticed a big difference the first day! That's not what happened. HHS Vulnerability Disclosure, Help They said the scar from my thyroid surgery is mostly healed and looking good and that we can start planning the 2nd ear surgery. I later saw a special on TV (I don't remember if it was Dateline NBC or Front Line PBS) about hospitals getting more aggressive in seeking payments up front. Finally, I told the nurse I was overheating and she suggested taking off the leg squeezing devices. Do not scrub the wound or put pressure on it with high pressure water or your fingers. He said he wanted to get my RAI done - he likes to do it within 3 months of surgery and thought it had been enough time since ct. The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer. I had some really entertaining PACU nurses who I conversed with for the better part of two hours until my room in the ICU was ready. I had a nodule in my neck for over two years before I got it tested. An evaluation of the incidence, the typology and predictive factors of chronic pain was carried out at 3 and 6 months after thyroidectomy.A prospective observational study, having included each of the patients prior to their thyroidectomy, was carried out over 12 months. While I was taking 150 mcg/day, I was feeling quite good but she said my tsh didn't need to be repressed that much, that I was borderline hyperthyroid, and cut me back to 125, and then 115 (at which point I felt rather garbagey, started struggling with depression, muscle pain and some fatigue). The major questions I waned answered were: how many thyroidectomies do you do a year and what is your complication rate? I know part of it is because of my cats needing cuddles at 3 am, but I was wondering if anyone else had this problem. The only problem I had with the surgery was hiccups that lasted about 10 days, I was told this was due to the tube they put down your throat during anesthesia. My biggest node was 3.5cm, with a couple other in the 2-3cm range, plus ~30 cancerous lymph nodes. My Endo says I still "have" cancer (I wanted to clarify) not sure when that Dx will go away but I've read 5 years (is this true?). Furthermore, last night, I was awoken at 3 am by pain in my neck. 1. Reading other posts I feel a little discouraged that this feeling of fatigue is so common . Post Operative Expectations. I had to drive to Denver three days in a row. Appreciate any help on this. I also feel much more anxious and depressed. After 7 days I went for my body scan. Surgery was over at about 8:15 and they decided to keep me overnight because my calcium levels wouldn't be back until way late. I would characterize what I went through as "mild discomfort." Then, they hit me with propofol and the lights went out. Also I had a follow up with my mental health provider. Disclaimer. Unable to load your collection due to an error, Unable to load your delegates due to an error. As of august I am no longer seeing mental health, they think Im normal, and I am feeling a lot better. I have heard some things from Dr's here I question a little bit (As I told some people before no low iodine diet was ever recommended etc although I did a 5 day extreme low one so . ). Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. 2012 w/ different Endocrinologist, found 6 very large lymph nodes in neck. Some people are put on T4 when they leave the hospital. official website and that any information you provide is encrypted Neck /throat tightness and pressure Total Thyroidectomy 16 . [4] When I arrived I caught up with my family who brought the things i needed (PLEASE buy a nice neck pillow, I got a memory foam one from Amazon and it was a comfort saver) and even laughed a bit. October 25th had my first Vestibular training they had me bring S. incase the therapy makes me too dizzy to be able to drive. "Neck pain and discomfort scale" and "Patient and Observer Scar Rating Scale" were applied again in both phone calls. On the 18th of June I went back to Dr Ch., Endocrinology at Madigan for follow-up on my CT scans and to check the balance on my thyroid meds. I'm still a horse. The week of the 20th to 25th I had my first run-through of TAP class, there is so much information they give you there I am so glad I can go again prior to retiring. On June 10 I had my follow-up with Dr H. for the thyroid removal and got another unofficial look at the CT scan. I read that thyroid cancer has a 95% cure rate and 30% reoccurrence (is this true?). Initial risk classification was determined as T3N1bM0, American Joint Committee on Cancer (AJCC) 8th edition stage 1, and intermediate American Thyroid Association risk. Next for me is RAI and then WBS. She did not develop other complications of thyroidectomy, such as bleeding, wound infection, vocal cord palsy or hypoparathyroidism. Results. My experience with thyroid cancer- so far: This is because the symptoms are related to the dispersion of the nerves in the area of the surgery. I also felt extremely nauseous (although I did not vomit). For me, this was the only appointment at which anyone even discussed paying up front for services. I was told that frequently they run early. Getting up and moving was huge - really helped shake off the remaining cobwebs from the anesthesia. 18 October. My first endocrinologist was awful to deal with so I switched to seeing my current endocrinologist, who is ok but a hour and a half drive and she recently reduced her clinic hours to just on friday which doesnt work with my work schedule. government site. Anyway - I am still alone in hotel away from Family after RAI. Another trip to Madigan with another appointment with ENT at Madigan. Nov 2009 through Oct 2010. Calcium level 1 day post TT dropped a bit but so far no tingling sensation on the cheeks / jaw, fingers or around my lips, but i'll know more about after my next blood work in a couple of weeks. It just takes the right approach. I have been drinking a lot more water because of the dry mouth condition and always wake up with an extremely dry mouth. Evid Rep Technol Assess (Full Rep). Also, for me that was nice because they normally come out on day 2 to 4 after surgery and that would have meant another 100 mile round trip to get the JP drain removed. A literature review shows a variable postoperative onset of Horners syndrome between 2 days and 1 week. I had my TT exactly 2 weeks ago. I have friends that "had a friend that went through this and they are just fine". Soooo I got in to see a new guy in my Drs practice and he referred me to an ENT the next week. Application of the healthcare failure mode and effects analysis system to reduce the incidence of posture syndrome of thyroid surgery. I had to cave in and take one of my remaining pain meds. How long it takes to recover will depend on your situation and the type of surgery you had. From the time I knew I would be "going under the knife" I started experiencing panic attacks, thoughts of extreme terror, and general malaise. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. Just allow some water to run over the incision site and cleanse it. Within half an hour I was being wheeled to the elevator to head down to the first floor. I did not have a JP drain, but I've had them for other surgeries and I know they are annoying. Voice affectations after thyroidectomy thyroidectomy surgery side effects 1 Week Post-Op Total Thyroidectomy Had total thyroidectomy Major problems after total Thyroidectomy, very scared =(chest tightness, headache, fatigue - post thyroid surgery Problems swallowing after thyroidectomy. Sihawong R, Janwantanakul P, Sitthipornvorakul E, Pensri P. J Manipulative Physiol Ther. Double check with your insurance even if your dr and hospital say you're covered. Take care everyone, and to those with surgeries coming up I wish you all the very best. Nothing too bad though, and apparently I had the biggest dose you can give without being hospitalized, so most people will be getting less. He got out the floor roll to start working on my leg muscle as well man that hurts. You are now HYPOTHYROID. July 15th Friday Madigan hearing consult from first ear surgery and pre surgery plans for 2nd ear surgery ENT clinic follow-up from thyroid surgery and the start of the planning for my 2nd ear surgery. I was told I had a goiter and it could be cancer so I needed to get to my primary dr asap. Two things which haven't gone away, and bugging me greatly are: Objective: So, I might be called to come in early. A few days later I realized that I had not heard things like birdsong in 3+ years. On the Aug 18 I had my 2nd Stapendectomy surgery with Dr C2. Also, through the night I drank some more water using the chin to my chest trick to get the water down. After the physical therapy I will probably be attending my first cancer survivor group at Bremerton Naval. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. He currently thinks they are looking good at the level I am at and wants to wait till December before he adjusts them. I had RAI in first week of Feb and started with 150 mg of levothyroxin, which was reduced to 125 mg last week after my first follow up. 3) Met with Surgeon and he said, the mass on right was big enough that it needs to come out weather cancer or not . so according to the ultrasound write up surrounding lyphnodes were normal but no film existed. Surgery took 6.5 hours and everything went well. An 84-year-old woman presented with chronic neck pain one year after thyroidectomy. The .gov means its official. Stretching exercises vs manual therapy in treatment of chronic neck pain: a randomized, controlled cross-over trial. And yes, I know it could have been worse. I then used the towel to dry off and threw the blanket over me to keep from exposing myself to the world. Has anyone struggled with breathing issues post TT? It's not completely numb but the inside feels like muscle / skin is falling asleep or 'thick' (not sure if i describe them properly). That was a Tuesday. Now that I have my Vestibular training times setup I hopefully will be able to schedule Physical therapy for my knees without conflicts. The nurse said, how was that. It continued for maybe a couple of weeks and always took me by surprise. By 6:30 or so I was famished. If anyone has / had the same issues, any info on them would be great. Results: Which on one hand I'm annoyed, but on other hand - if its cancerous GET IT OUT. However, the location on the neck minimizes the likelihood of keloids. Your neck is likely to be swollen and may feel hard and numb right after the surgery. Anyway this is what is going on now. Some of what I posted before was right after surgery via my smartphone. For now though they cant give me any anti inflammatory meds because I am too close to surgery and I cant take anti inflammatory meds prior to surgery. Wish me luck. I went to bed and slept until 445 am when I took some Tylenol and went back to sleep until 730am. My family members tried to reassure me that everything would be ok, but I just couldn't stop thinking thoughts of "what if I don't wake up," "what if I do wake up," "what if they find something incredibly bad inside." He also said he would slowly decrease our visits since I am not having the depression issues and I am in a stable mental condition. Another good point I did not have any hiccups from this surgery. On April 20th I was informed that the results from Armed Forces institute of Pathology Washington DC and the summary was that the large mass of follicular cells was also cancer. Ultrasound revealed another Lymphnode near Thryoid bed that is 1.5cm (Where did that come from, could it be enlarged due to surgery? This is my biggest problem at the moment, not being able to work out is making me sit here and lose my mind. May 4, 2015 7:40 PM. I also had a Nutrition Seminar on the 28th and found out that some of my energy, pain problems might be related with my Vitamin and Mineral levels. Thyroid cancer support group and discussion community. They ran blood tests, no infection or blood clots . It has become shrill and high-pitched. She was confident that these findings appeared after her thyroid surgery. They seemed as entertained by me as I was them, since most of the patients are far more groggy. Epub 2022 May 30. It is estimated that 70% of patients with Horners syndrome after thyroidectomy will have permanent damage or incomplete recovery while the remaining 30% will completely recover between 5 to 15 months after surgery. The problems I have had with the radiation therapy metallic salty taste in mouth and constant dry mouth. NSAIDs (non-steroidal anti-inflammatory drugs) such as ibuprofen (Motrin, Advil), naproxen (Naprosyn, Aleve), or acetaminophen (Tylenol) are most helpful for any pain after thyroid or parathyroid surgery. Whiplash during automobile accidents is a common injury that causes neck pain. I woke up and ate some more pretty soft food (didn't want to push it) and stayed up until about 10pm. Hi! I was advised to see an endo ASAP. However, there was no significant difference between the groups with regard to the scores at the 1-month evaluation (p > .05). I got into bed and took a 3 hour nap, which was pretty glorious. When I first started this journey I read that thyroid cancer is a good cancer to have and I told my family this to ease their fears (and mine). The first four days or so were the worst.
jamie dinan, daughter
High-pressure air pump: dual function of blowing and suction, with
